Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Greydanus, Donald E.; Rubin, I. Leslie; Patel, Dilip R.; Merrick, Joav

Springer International Publishing AG

09/2020

2268

Mole

Inglês

9783319792453

15 a 20 dias

4583

Descrição não disponível.
Foreword; David Satcher.- Tribute to Allan Crocker; I. Leslie Rubin.- Introduction to the volume; I. Leslie Rubin.- Part I. Systems of Delivery Health Care.- Chapter 1. Introduction to Intellectual and Developmental Disabilities; Dilip R. Patel, Donald Greydanus, Joav Merrick and I. Leslie Rubin.- Chapter 2. Health is More Than Medicine; Donald J. Lollar and Randall A. Phelps.- Chapter 3. Health of Health Care for People with Intellectual and Developmental Disability; Wendy M. Nehring and Brandi Lindsey.- Chapter 4. Family Centered Care.- 4.1. Family Centered Care in a Health Care Setting; Catherine de Haas and Ruth Ryan.- 4.2. Siblings of Children and Adults with Intellectual and Developmental Disability; Monica McCaffrey.- 4.3. Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities; LaShawnDa Pittman, Janice Nodvin and Maeve Howett.- 4.4. Aging Parents; Nancy S. Jokinen.- 4.5. Rights of Individuals with Disability to Parenthood; Karen McKenzie,Laura Shewan and Suzanne Wilson.- 4.6. Foster Care; Julie Dini.- 4.7. Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach; Stacey Ramirez, Staeshe Collins and Brenda Liz Munoz.- Chapter 5. Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities across the Lifespan; Georgina Peacock and Cheryl Rhodes.- Chapter 6. International Classification of Function; Margaret Kyrkou.- Chapter 7. Systems of Health Care Delivery.- 7.1. Clinical Settings for Health Care Delivery; Stephen B. Sulkes.- 7.2. Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings; Daniel Crimmins and Akilah Heggs.- 7.3. International Perspectives on the Delivery of Health Care; David O?Hara.- 7.4. Health Care Financing; David Ervin.- 7.5. Systems of Health Care Delivery: Community Setting; Rosemary M. Caron.- 7.6. Models for Care for Children with Medical Complexity; Melinda Morin, Justin Alvey, Nancy Murphy and Laurie Glader.- 7.7. School Settings; Jeffrey Okamoto.- 7.8. Health Care Transition; David Wood, Linda R. Edwards and Brian Hennen.- 7.9. Community Healthcare; David A. Ervin and Brian Hennen.- 7.10. Nursing Home Settings; Nursing Home Settings; Sandra Friedman.- 7.11. Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives; James Conroy, Steven J. Dale and Robert McCaffrey.- 7.12. Large Residential Facilities; Norberto Alvarez.- 7.13. Community Nursing; Joan Earle Hahn and Laura E. Fox. 7.14. Medical Home; Liz Grier.- Chapter 8. Principles of Care and Ethics; Peter J. Smith.- Chapter 9. Practicalities of Care. 9.1. Practicalities of Care for Adults with Intellectual and Developmental Disabilities; Peter Lindsay and Matt Hoghton.' 9.2. Electronic Medical Records; Stephen B. Sulkes.- Chapter 10. Intellectual Disability and the Environment.- 10.1. The Environment; J. Carolyn Graff and Jeffrey A. Foran.- 10.2. Fetal Environment and Risks for Intellectual and Developmental Disabilities; I. Leslie Rubin.- Chapter 11. Built Environments for Improving Human Development and Promoting Health and Quality of Life; Chris Kochtitzsky and Michele Crachiola.- Chapter 12. Public Health Perspectives on Intellectual and Developmental Disabilities; Gloria L. Krahn and Michael H. Fox.- Chapter 13. International Perspectives.- 13.11. Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium; Koen Hermans and Anja Declerq.- 13.2. Service for People with Intellectual Disability in the United Kingdom; Hardeep Uppal and Vee P. Prasher.- 13.3. People with Developmental Disabilities in the United States of America; Gloria L. Krahn and Lynda B. Bersani.- Chapter 13.4. Former Soviet Union; Naira Avetisyan.- 13.5. Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan; Kuo yu Wang.- 13.6. Intellectual Disability in India:Recent Trends in Care and Services; Satish C. Girimaji and John VS Kommu.- 13.7. Hong Kong, PRC; Ben MF Law and Daniel TL Shek.- 13.8. Israel; Joav Merrick and Mohammed Morad.- 13.9. Canada; Ian Casson, Theresa Broda, Jessica Jones, Alvin Loh, Bruce McCreary, Ullanda Niel and C. Ruth Wilson.- 13.10. Organization of Services and Life-Long Health Care: Japan; Shigeru Suemitsu and Susumu Uehara.- 13.11. Special-Needs Education, Special Care, and Education for Physicians in Finland; Markus Kaski.- 13.12. South America. A Service Example from Lima, Peru; Liliana Mayo and Judith M. LeBlanc.- 13.13. Status of Legislation and Services in Turkey across the Lifespan; Kerim M. Munir.- 13.14. Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands; Frans VPM Ewals and Sylvia A Huisman.- 13.15. International Perspectives: Chile; Rosario Moore, Patricia M Valenzuela, Maria A Paul and Macarena Lizama.- 13.16. Services for Persons with Intellectual and DEvelopmental Disabilities in Italy; Fabrizio Fea.- 13.17. Denmark. A Historic Journey; Joav Merrick, Peter Uldall and Jakob Volther.- 13.18. Service and Care in Australia; Robert W. Davis.- 13.19. Africa; I Leslie Rubin.- Part II. Clinical Care.- Chapter 14. Developmental and Functional Evaluation and Assessment; Dilip R. Patel and Cora M. Taylor.- Chapter 15. Communication with Patients, Parents and Other Caregivers; Sheridan Forster.- Chapter 16. Inborn Errors of Metabolism.- 16.1. Newborn Screening; Geoffrey R. DeTolve.- 16.2. The Mucopolysaccharoidoses; Robert Conway.- 16.3. The Sphingolipidoses; Robert Conway.- 16.4. Mitochondrial Disorders; Frances D. Kendall.- Chapter 17. Genetics and Genetic Syndromes.' 17.1. What is New in Genetics and Genomics?; Helga V. Toriello.- 17.2. Autism and Genetics; Helga V. Toriello.- 17.3. 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder; Joseph F. Cubells.- 17.4. Genetic Counseling; Sarah L. Klemm and Jennifer Fulbright.- Chapter 18. Syndromes.- 18.1. Down Syndrome; Brian G. Skotko and Ariel Tenenbaum.- 18.2. Fragile X. Syndrome; Emma Hare, Reymundo Lozano, Lindsey Partington and Randi J. Hagerman.- 18.3. Rett Syndrome: Seeing the Way Forward; Alan K. Percy.- 18.4. Prader Willi Syndrome; Randell Alexander.- 18.5. Williams Syndrome; Elaine Pereira, Robert Marion and Barbara R. Pober.- 18.6. Angelman Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson.- 18.7. Smith-Magenis Syndrome; Donald E. Greydanus and Joav Merrick.- 18.8. Noonan Syndrome; Jacqueline A. Noonan.- 18.9. Phakomatoses; Bruce Korf.- 18.10. Spina Bifida; Robert A. Jacobs, Alexis Deavonport, Kathryn Smith and Alex Van Speybroeck.- 18.11. Fetal Alcohol Syndrome; Ariel Tenenbaum, Isaiah Wexler and Joav Merrick.- 18.12. Other Syndromes.- 18.12.1. Lowe Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson.- 18.12.2. Nager Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson.- 18.12.3. Sturge-Weber Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson.- 18.12.4. Klinefelter Syndrome; Vandana Raman.- 18.12.5. Cornelia de Lange Syndrome; Elizabeth Poplawski.- Chapter 19. Prematurity and Ist Consequences; I. Leslie Rubin.- Chapter 20. Cerebral Palsy; Sarah Winter.- Chapter 21. Neurological Disorder.- 21.1. Congenital Anomalies of the Brain; Ayelet Halevy, Osnot Konen and Aviva Mimouni-Bloch.- 21.2. Epilepsy; Norberto Alvarez.- 21.3. Sleep disorders; Norberto Alvarez.- 21.4. Movement Disorders; Paula D. Ravin.- 21.5. Dementia and Alzheimer's Disease; Norberto Alvarez.- 21.6. Peripheral Nerve Disorders; Norberto Alvarez.- Chapter 22. Physiatry and Function.- 22.1. Pediatric Aspects of Physiatry and Function; Joshua Vova and Maurice G. Sholas.- 22.2. Psychiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities; Dale C. Strasser, Laura Jones and Mitchel Leavitt.- Chapter 23. Developmental Therapies and Functional Assistance.- 23.1. Allied Health Professionals; Meir Lotan.- 23.2. Occupational Therapy; Sharon A. Cermak and Ann E. Borreson.- 23.3. Physical Therapy; Priscilla S. Osborne and Meir Lotan.- 23.4. Speech Language Pathology: Supports to Communication; John M. Costello and Howard C. Shane.- Chapter 24. Health Promotion; James H. Rimmer and Kelly Hsieh.- Chapter 25. Orthopaedic Considerations; Karen M. Bovid and Dilip R. Patel.- Chapter 26. Dermatology; Brian P. Pollack, Leslie P. Lawley, Jenna Streicher, Jason Hadley and Jack L. Arbiser.- Chapter 27. Eye and Vision Care; Laura Gwatkin.- Chapter 28. Dentistry; Ilan Feldberg and Joav Merrick.- Chapter 29. Otolaryngology.- 29.1 Hearing Impairment; Peter Chung, Shibani Kanungo and Dilip R. Patel.- 29.2 Otolaryngology; Michael McWay and Colleen Dodich.- Chapter 30. Gastrointestinal Issues; Orhan Atay.- Chapter 31. Nutrition; Dawna Torres Mughal and Patricia Novak.- Chapter 32. Feeding Aspects; Laura Minando and Elana M Bern.- Chapter 33. Endocrine Issues; Rachel-Marie A. Cazeau and Manmohan K. Kamboj.- Chapter 34. Urological Concerns; Julian Wan.- Chapter 35. Cardiology.- 35.1 Congenital Heart Disease and Down Syndrome; Kenneth J. Dooley.- 35.2 Congenital Heart Disease; Shiva Sharma.- Chapter 36. Pulmonology, Sleep Disordered Breathing and Sleep Apnea; Charles A. McCaslin and John Norman Schuen.- Chapter 37. Women's Health; Stephanie J. Stockburger and Hatim A. Omar.- Chapter 38. Men's Health; Joav Merrick and Mohammed Morad.- Chapter 39. Sexuality; Sorah Stein and Mitch Tepper.- Chapter 40. Cancer and Oncology; Walid Kaddan and Joav Merrick.- Chapter 41. Severe and Profound Intellectual Disability.- 41.1 Care; Margaret Kyrkou.- 41.2 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities; Fleur-Michelle M Coiffait and Alexandra T Leedham.- Chapter 42. Geriatrics.- 42.1 Aging: Demographics, Trajectories and Health System Issues; Kruti Acharya, Abigail Schindler and Tamar Heller.- 42.2 Optimizing Health While Aging with Developmental Disabilities; Carl Tyler and Joanne Wilkinson.- 42.3 Dementia: Screening, Evaluation, Diagnosis and Management; Seth M. Keller, Matthew P. Janicki and Lucille Esralew.- 42.4 Assistive Technology and Older Adults; Eliezer Carmeli, Bita Imam and Joav Merrick.- 42.5 Sarcopenia: Facts and Challenges; Eliezer Carmeli and Joav Merrick.- Chapter 43. Mental Health and Behavior.- 43.1 Introduction to Mental Health; Jarrett Barnhill.- 43.2 Psychiatric Assessment; Mike Stawski.- 43.3 Autism Spectrum Disorder; Raun D. Melmed and Joseph F. Cubells.- 43.4 Attention Deficit and Hyperactivity Disorder; Mark L. Wolraich.- 43.5 Mood Disorders, Depression and Bipolar Disorder; Uttam K. Raheja and Teodor Postolache.- 43.6 Anxiety: Challenges of Normal and Abnormal Responses; Alya Reeve.- 43.7 Behavior Approach to Management of Aggression, Self-Injurious Behavior, and Pica; Sorah Stein, Craig Strohmeier, James K. Luiselli and Christopher A. Tullis.- 43.8 Basic Psychopharmacology; Jarrett Barnhill.- 43.9 Integrated Psychopharmacological Management; Jarrett Barnhill.- 43.10 Psychosis; Robin Friedlander.- 43.11 Diagnostic, Treatment,and Service Considerations to Address Challenging Behavior: A model Program for Integrated Service Delivery; Joan B Beasley, Ann Klein and Karen Weigle.- 43.12 Working with Children and Working with Schools; Sorah Stein and Craig Strohmeier.- 43.13 Inpatient Psychiatric Care; Lauren R Charlot.- 43.14 Multidisciplinary assessment; Lauren R Charlot.- 43.15 Integration of Mental and Behavioral Health in Primary Care; Ashley Williams and David A. Ervin.- Chapter 44. Infectious Diseases, Immunizations and Universal Precautions; Rima Khasaweh, Jillian Wallen and H. Dele Davies.- Chapter 45. Intensive Care; Mahesh Sharman and Jeff Clark.- Chapter 46. Adoption; Gary Diamond.- Chapter 47. Emergency Care; Deborah Dreyfus and Kim A. Bullock.- Chapter 48. Primary Health Care.- 48.1 Community-Based Primary Healthcare for Adults; Marc T. Emmerich.- 48.2 An E-toolkit for Primary Health Care of Adults; Thomas Cheetham.- Chapter 49. The Professional Nursing Role in Support of People with Intellectual and Developmental Disabilities; Marisa C. Brown.- Chapter 50. Principles of Pharmacology; Cynthia Feucht, Dilip R. Patel and Karen M. Bovid.- Chapter 51. Podiatry; Angela Evans, Hylton Menz, Jared Bourke, Nikolaos Nikopoulos, Jill Ferrari, Meredith Wilkinson, Stewart Morrison, Joshua Burns, Shannon Munteanu, Valerie Dobie and Tom Walsh.- Chapter 52. Pain; Chantel C Barney, John Belew, Abraham J. Valkenburg, Frank J. Symons and Tim F. Oberlander.- Chapter 53. Anesthesia in Children; Fatis Altintas and Ozlem S. Cakmakkaya.- Chapter 54. End-of-Life Care; Sandra L. Friedman and David T. Helm.- Part IV. Values and Quality of Care.- Chapter 55. Assessing Health and Quality of Care; David A. Ervin and I. Leslie Rubin.- Chapter 56. Social Determinants of Health and Disability; I. Leslie Rubin.- Chapter 57. Concepts of HolisticCare.- Soren Ventegodt, Isack Kandel, David Ervin and Joav Merrick.- Chapter 58. Integrative Medicine; Hilary H. McClafferty and Kathi J. Kemper.- Chapter 59. Guardianship and Independence: Decision-Making Options; Tina Sarkar.- Chapter 60. Inclusion.- 60.1 The Importance of Inclusive Participation in Securing Quality Healthcare Throughout the Lifespan of Persons with Intellectual and Developmental Disabilities: Personal Perspectives; Steven J. Dale and Robert P. McCaffrey.- 60.2 Ideal Requirements for the System of the Future: Self-Determination; Thomas Nerney with Steven J. Dale.- Chapter 61. Abuse and Neglect.- Vincent J. Palusci, Ellen Datner and Christine Wilkins.- Chapter 62. Healthcare Utilization and Costs for Individuals with Disabilities; Neelkamal Soares, Thomas Graf and Dilip R. Patel.- Chapter 63. Trends in Using Technology to Achieve Better Health Outcomes; David O'Hara, Steven E. Stock and Daniel K. Davies.- Chapter 64. Family Quality of Life; Roy Brown, Margaret Kyrkouand Preethy Samuel.- Chapter 65. Education of Health Professionals.- 65.1 Physicians; Matthew Holder.- 65.2 Nursing Education about People with Intellectual Disability: An International Perspective; Joan Earle Hahn.- 65.3 Other Health Professions; Amy Hewitt, Amy Esler, Sheri Stronach, Lindsey Zemanek, Elizabeth Adler, Julie Arndt, Jessica Cassidy, Rande Peyton and Tonya Rich.- 65.4 What Undergraduate and Graduate Students Should Know about Disability; Susan M. Havercamp and Patricia Navas Macho.- 65.5 Continuing Education for Health Care Providers; Susan M. Havercamp and Patricia Navas Macho.- 65.6 Interdisciplinary Training; David T. Helm.- Chapter 66. Barriers to Care; Lynda Lahti Anderson and Sheryl A. Larson.- Chapter 67. Coping with Caregiver Stress; Elizabeth A. Perkins and Amy Hewitt.- Chapter 68. Special Olympics; Stephen Corbin and Matthew Holder.- Part IV. Research Aspects.- Chapter 69. Research Aspects; Joav Merrick.- Chapter 70. Health Research in Intellectual and Developmental Disabilities; Rose E. Nevill, Haleigh M. Scott and Susan M. Havercamp.- Chapter 71. Clinical Trials; Ekaterini Tsilou and Anne Zajicek.- Part V. Disaster Medicine.- Chapter 72. Disaster Planning and Response with and for People with Disabilities; Joni Charme, Georgina Peacock, Stehanie Griese, and Bill Howard.- Part VI. Medicine or Health: Science or Art?.- Chapter 73. A Healthy Dose of Laughter and the Arts: The Role(s) of Play, Laughter and the Arts in Promoting Good Health and Maintaining Quality of Life; Bernie Warren, Candace Hind and Sydney Holmes.- Part VII. UN Convention.- Chapter 74. Health and the UN Convention on the Rights of Persons with Disabilities; Joav Merrick and Mohammed Morad.- Part VIII. Future Aspects.- Chapter 75. A Glimpse into the Future; I. Leslie Rubin, David A. Ervin and Joav Merrick.
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Aging with Disabilities;Assessing Health and Quality of Care;Causas and Consequences of Prematurity and IDD;Communication with Patients with IDD and Family;Concepts of Holistic Care;Develomental Therapies and Health Professionals;Family Care and People with Intellectual Disability;Genetics and Genetic Syndroms for People with IDD;History of Health Care for People with Intellectual Disability;IDD Intellectual and Developmental Disabilities;Integrative and Complementary Health and Alternatives;International Perspectives for Health Care of IDD;Lifespan Care and People with Intellectual Disability;Medicine and Health;Mental Health and Behavior;Neorological Disorders;Severe and Profound Intellectual Disability;Social Determinants of Health and Disability;Syndroms of Developmental Disabilities